Emma, 47, has been caring for the 70-year-old actor since he was diagnosed with frontotemporal dementia, and recently revealed she had made the difficult decision to move him into a one-storey house with a full-time care team to protect the wellbeing of their daughters Mabel, 13, and Evelyn, 11.
Heming Willis took to Instagram a few days after the ABC special Emma and Bruce Willis: The Unexpected Journey with Diane Sawyer aired.
In a posted video, she said they did a "beautiful job with amplifying FTD awareness" and shining a spotlight on caregivers. But she knew that by sharing some intimate information they would see people in two camps - those with an opinion versus those with experience.
"(I anticipated that) people with an opinion (are quick to judge) the caregiver. That is what caregivers are up against. Judgment from others and criticism from others," Heming Willis said in her Instagram video.
"Nothing changes an opinion quite as powerfully as when you have an experience.
"Even if someone is closely familiar with dementia or the condition you are caring for, they aren't in your home, so they don't know how your person is behaving or your family dynamics."
She captioned her post: "Too often, caregivers are judged quickly and unfairly by those who haven't lived this journey or stood on the front lines of it.
"Sharing openly may invite opinions, but more importantly, it creates connection and validation for those actually navigating the realities of caregiving every day.
"That's who I share for and so I can build a deeper connection with a community that understands this journey."
Heming Willis says Bruce is still very mobile and in "really great health overall".
"It's just his brain that is failing him."
Along with his kids with Emma, Bruce also shares three adult daughters with his former wife Demi Moore - Rumer, 37, Scout, 34, and Tallulah, 31.
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